Something Isn’t Working…

Refresh the page to try again.Error: 19350fecc50c4dbfad2572db1d456f72

Dystopia: an imagined place or state in which everything is unpleasant or bad.
Dystrophia: a real place or state of muscular dystrophy in which everything is ...

 I am 46 years old living in the United States and this is my journey and my experiences of living with a rare congenital muscular dystrophy known as SEPN1-RSMD.

Search By Tags

© Copyright mydystrophy.com 2016